Wednesday, May 21, 2008

Pin cushion

Hello again,

Heather has had a couple of good days this week. Sister Kim and mom brought Kylie back and spend time with Heather. What a boost!!!! You can see Heather light up when they come into her room. Of course, seeing our daughter was a hugh bost for me. I fight with the fact that I can't keep me family together. While I know the circumstances are out of my control, it still hurts and is frustrating.
Today was very busy and probably the most hectic for Heather. I could tell right away that she was tired when we arrived in her rom this morning. After rounds by docs, we were told that some other docs would be seeing her. Little did we realize to what extent. It started with the replacement of her trach tube with a smaller more comfortable tube. Not sure how any tube in your throat can be comfortable but.... x-ray shows right lung clearing up (yeah!!) but fluid near left lung. Kidney functions are tanking according to the reports (eyes still jauntice so it must be true) so they have kidney specialists here. Also, have strange blotches on her left arm so the sent in dermatologist to look. Look must be doctor talk to poke, prod and cut. While the ultrasounds are comfortable, let's talk about all the holes we had put in her. Did a skin biopsy on her arm to see what the blotches are. Basicly a cookie cutter 3 mm wide twisted into her arm and then pull out the skin. Sucture close. Need unbiased blood draw for kidneys - hey no one has messes with her feet, let's go there. Two draws- one each on top of each foot. Let's look at her lung, hmm... ultrasound shows fluid, let's do a needle biosy to draw some out to see if it is infection or something else. Another poke! While we are here, let's draw out the fluid. Ended up with almost a full liter of fluid pulled out of her left lung. Don't know how she does it. She is the most remark-able woman I have ever met. I hope she feels all the love I have for her. Gave her pain meds to keep her comfortable and let her sleep. Time to go. Keep the prayers coming. Hopefully, we have turned the corner. God bless you.

Jim

5 comments:

Kevin McLean said...

Thank you so much for the updates. We think about Heather all the time and hope so much that she has turned the corner and that all of this painful, scary stuff is behind you guys soon.

And you sure are right, Heather is a remarkable woman!

Please tell her we are rooting for her and thinking about her here in Denmark.

All the best.

Kevin

Heather Reid said...

Thanks for your support. I will definitely let her know you are thinking of her. I hope you are making good progress and things are going better in Denmark for you also.

jim

Anonymous said...

Anne and I echo Kevin's comment. We do think about both of you all the time. One question: Heather and Jan mentioned TTP. Is this a continuing concern, or was it just a one-time thing?

Heather Reid said...

I believe the TTP or as they now seem to think TMA is the underlying issue with Heather. Apparently, it is some type of blood issue seen in a few BMT patients. It is difficult to diagnose and hard to treat. They don't understand it fully so it is difficult to know how to treat. We are doing everything to treat the symptoms such as dialysis as it is messing with her kidneys, plasma apheresis to cleanse the blood. Heather is such a fighter and one who beats the odds. We just need another miracle. It truly is is God's hands. Thank you for your continued love and support. Jim

Anonymous said...

Both Jim and Heather amaze me...I often wonder if I would have the strength and courage to fight the fight they battle each day. One thing is for sure, the love they have for each other is immense and nothing can deter it. As I am sure everyone can attest, we all wish we could do more to help, but at times all we can do is pray..and pray we do. I love you both dearly. Love, your sis, Beanie